These are some earlier posts

May 12, 2006 Mom By JerryGriep Obviously I can't think straight! I never mentioned my Mom in all the ramblings below. It seems she spends all her waking hours searching for a cause and a cure to this insolvable nerve disorder. She even comes up with suggestions like an oxygen chamber, vitamin B12 shots, and others I can't remember right now. They are all good suggestions. Thanks Mom. Don't worry. Posted on: Fri, May 12 2006 9:47 PM

Must Diet By JerryGriep I must lose weight. The various medications I have been taking for the past 2 and a half years have caused me to gain a considerable amount of weight. It may sound like I'm blaming the medication instead of dealing with self control, but it really is caused by certain drugs. Before the trigeminal neuralgia hit me, I lost 25 pounds on a great diet. It really worked and I was confident it would last a lifetime. But medication ruined all that. Now that the pain is under control (cross your fingers), I'll figure out a way to lose weight again. Posted on: Fri, May 12 2006 8:58 PM

Good Face By JerryGriep I had a follow-up visit with Dr. Borodic and said that I think the Botox is really helping with the facial pain. He said I could have another set of injections as early as 3 months. Caroline will start to work with the insurance company to have this treatment covered. As if I didn't have enough trouble returning to work... I caught a very bad cold the second day back to work. This has been a bad cold. Now Caroline has it. I'm on the rebound now. I'm glad there are no other gigs for the month of May. It's good to have a break before the 10 day tour in the UK at the end of June. Posted on: Fri, May 12 2006 8:50 PM

May 6, 2006 Birds By JerryGriep I'm sitting out on the deck enjoying the birds at the bird feeder. Caroline and I consistently see cardinals, chickadees, finches, sparrows, titmice, woodpeckers, thatchers, red-winged blackbirds, Carolina wrens, and blue jays. There are dozens of robins on the ground (they never go to the feeder). This time in the spring, I see the male birds feed their female partner. This cardinals do this the most. Of course there are the squirrels. There are at least three racoons that have found the feeders and can get at them. We have to bring the feeders inside every night -- what a pain! No humming birds yet. We have the humming bird feeder out, but it may be too early in spring. Posted on: Sat, May 6 2006 1:14 PM

Botox! By JerryGriep On April 27, I went to Dr. Borodic for Botox injections. No, not to improve my appearance, but to see if the botox injections would help alleviate my facial pain. Dr. Borodic is one of the pioneers in treating facial pain using botox. He has been very successful in several people with trigeminal neuralgia. I had 12 injections around the eyes. It has been 9 days and I think it is helping. I feel less intense burning in the face, and I think I'm less sensitive to heat and humidity. I sure hope it continues. Botox injections can be administered 6 months apart. Posted on: Sat, May 6 2006 12:52 PM

May 4, 2006 Hello By JerryGriep Although I am not a verbose writer, maintaining a blog might be good for me. I have always wanted to write a diary, even though there may be gaps of several weeks or months! This first note kicks off a difficult topic -- one that will be pervasive until resolved. My Dearest Family and Friends, Perhaps writing this short note will somehow help me in my attempt to handle my facial pain affliction that began two and a half years ago. I know that I have been "spaced out" for a long time now [insert your joke here!]. I know you have been trying to understand the problem and have been very kind. Thank you for your concerning questions and valuable suggestions. I have a strange type of Trigeminal Neuralgia (http://www.tna-support.org/newlook/definition.htm). Since November 17, 2003, I have suffered this bizarre, unimaginable pain around my eyes and cheeks. My symptoms involve a constant aching, burning, itching pain on both sides of the face as well as the characteristic TN electric shock sensations. This has been a diagnostic challenge to doctors because of this rare form of TN. The past two and a half years have been a blur -- except for my surprise 40th birthday party and relaxing vacations. It's been loaded with doctors, exams, tests, scans, theories, trials, etc. I've seen the best of the best neurologists and other doctors in Boston. I've received advice from neurosurgeons in Arizona and California. I certainly have maintained an aggressive, and desparate, diagnostic regiment and set of treaments. Did you think I would ever see an acupuncturist!? Last month, I was introduced to a fellow Raytheon employee who had trigeminal neuralgia. He called, and I answered "Hello, this is Jerry Griep." He immediately asked "Do you have trigeminal neuralgia?" I said "Yes." I'll never forget the conversation. He told me of his battle, and how he tried to keep working. It was the first time I talked directly with someone who had the same condition. He had surgery and has been pain-free for three years now. I wish it was that simple for me. Caroline helps me in countless ways. She schedules all my medical appointments. She drives me to every single appointment and test. She mows the lawn and shovels snow. She helps wash the cars and does all those things that I naturally think I can do. Caroline and I are planning to attend a Trigeminal Neuralgia Association Conference this September in Portland, Oregon. Thank you for your thoughts and prayers. Take care of your nerves! Love, Jer Posted on: Thu, May 4 2006 5:42 PM